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Comfort Food

Fri, 27 Nov 2015, 06:50 PM (-06:00) Creative Commons License

I managed to manage some real food for Thanksgiving, small bites well chewed — everything except for the green beans, which I didn’t think my throat could manage.

That was yesterday. And as the days have shown us for the last couple weeks, little by little, day by day, things have been getting better. From puddings in the hospital to oatmeal back at home to scrambled eggs and then fried eggs and then ham or chicken chunks.

And then today. Well today I am thankful for a lunch of Tarka Saag Paneer and Basmati rice and naan (Dad: naan!). And a dinner of Thanksgiving leftovers including a drumstick gnawed cleanly to the bone followed by House of Pies dutch apple pie (Bunka: pie!)

Admittedly, it’ll be a while before chips and queso, but I kinda feel like I’m beginning to reenter to world of the normal. … I mean, that pie was really good, therapeutic even!

Thanksgiving 2015

Thu, 26 Nov 2015, 12:43 PM (-06:00) Creative Commons License

I am thankful for being thankful for. Happy Thanksgiving to you all!

Thanksgiving2015

Florentine Shapes

Sun, 22 Nov 2015, 08:55 PM (-06:00) Creative Commons License

You might recall, that when we spoke last about our fall trip to Italy and Switzerland, the fair and industrious Trudy and I were wrapping up our last day in Florence. But then a little distraction came along, and the travelogue was suspended.

Let’s resume, shall we?

Before we leave Florence behind, how about a little study in the shapes and geometry of the place.

Full disclosure: Trudy’s skeptical of compilations of photos like these, but then I am at the keyboard, aren’t I?

By The Ocean

Sun, 22 Nov 2015, 02:53 AM (-06:00) Creative Commons License

Hawaii

That Was Recovery

Sat, 21 Nov 2015, 06:29 PM (-06:00) Creative Commons License

Recovery

Hours came and went. The sun rose and set. Doctors visited in the morning. Nursing shifts came and went. The Fair and Industrious Trudy never left my bedside.

Tuesday. Wednesday. Thursday. Friday. Saturday. Sunday. Days of moments in which the only task was to get to the next moment. The next meal. The next medication. The next walk down the hall.

And on Monday they pulled the drain. They pulled the tube. They pulled the IV in my right hand. They pulled the IV in my left hand. And they finally let me go.

More to come, but I confess that I’m happy to be past that.

The Making of Delirium, 1-2-3

Fri, 20 Nov 2015, 09:12 PM (-06:00) Creative Commons License

I am out of the hospital. Still waiting on full results. But am recovering in relative comfort at home, cared for by the Fair and Industrious Trudy, two dogs and a faithful son, with well wishes coming in from down the street, across town, and across the country.

So let’s get down to business…

Prelude

Appleton, Wisconsin. Some time in the 1960s. I’m pretty sure that’s where we were, visiting friends who had moved there. 

I remember nothing from the trip other than I was very, very sick. They had me in a bed upstairs, in an attic it seems, for I recall some steep stairs at the end of a long room. But my recollections are unreliable. The only thing I remember clearly is that I was delirious.

The delirium was so complete, that I remember having some kind of Fantastic Voyage in which a large white blood cell was oozing around me.

It would be years before I would figure out what that was all about: the white blood cell was my tongue and the oozing were my efforts to swallow. I know this, because years later as an adult I got very sick and when trying to swallow I found myself instantly and completely thrown back to Appleton, Wisconsin in the 1960s.

When you’re sick, a delirious brain can play games with you.

…which is why I asked you here today. As you know, I’ve just emerged from a week in the hospital. And I have stories of delirium to share.

1. Constructor delirium

After the surgery where they took a hunk out of the back of my tongue, they slipped a feeding tube up my nose, down my throat and into my stomach.

It’s not an exaggeration to say that it wasn’t particularly comfortable, leaving aside the fact that their first attempt (as I lay unconsciously oblivious) was a failure, and they had to first jiggle and finally remove the first (kinked) tube and thread a new one down as I sat upright and fully conscious on the bed.

Now, a tube going down your throat is not a normal thing. And in the darkness of those hospital nights, as I drifted between semi-sleep and semi-not-sleep, my brain just didn’t know what to make of it. The best it could do was translate things into something it knows. And for two horribly confusing nights, my brain was trying to figure out why my throat software had a malfunctioning class constructor.

In this case, there were three constructors involved: two on one side of my throat and one on the other side. And it’s this last one that was causing my brain the most anxiety, because for whatever reason is was in the wrong place, or it was doing the wrong thing, and all my brain wanted to do was rewrite the code to fix the dang thing so that it didn’t hurt so much.

For two nights, that’s all my brain would think about.

2. Anchor tag delirium

As the days merged with nights in the hospital, pretty much the only thing I was concentrating on was managing the pain. The nurses were generally good at this, but sometimes just before a shift change, after too much time had passed, while I was semi-sleeping, my brain would start interpreting the pain as a malformed HTML tag.

The tag should have looked something like this: <a href=”http://mdanderson.com/pain.html“>pain</a>.

But it was missing the href attribute. Instead, the tag looked something like this: <a>pain</a>. It was missing the reference to the true location of the pain, and as a consequence things were all messed up.

Problem is, knowing this didn’t seem to help. Because no one (including the nurses) came in to add the missing href attribute.

And so for several days, in the delerium of recovery my brain was silently screaming for someone just to fix the dang tag. 

3. Startup script delirium

“Something’s not working right,” I said to Trudy, sitting up in bed.

It was pitch black. She had been deeply asleep, and she didn’t have the faintest idea what I was talking about.

After all, of course something’s not working right: I have throat cancer!

But that wasn’t it. My brain was struggling to interpret some new signals from my body.

Since we had come home, I was drinking Tylenol-3 every 4-6 hours, and that stuff just doesn’t go down easily. On top of that, I had been on the feeding tube so long, that I had a lot of food in me, and … well let’s just say that it was running out of places to go. Or for the medicine to go.  

And every once in a while, I would wake up with a gurgling bubble of nasty, stinging, codeine-y something coming up my throat, making it impossible to lie flat on the bed.

Clearly this isn’t how it’s supposed to work. You’re supposed to lie flat when you sleep, and my brain was trying to figure out what was going wrong.

Actually, my brain had figured it out. It had, while I was sleeping, Googled the problem and figured out that there was just missing a line from my startup script. There was an if-check that my script didn’t have, a check that would detect the presence of these bubbles before they popped and append them to another variable before… well… that was the solution: add the missing line to the script. 

But it wasn’t helping. The bubbles kept percolating up. I couldn’t sleep because of it, and I was exhausted.

Postscript

“Ben, you have a strange father,” Trudy said after he finished reading.

Maybe so. But I think I’ve worked thru most of the deliria now.

 

 

When It Rains

Mon, 9 Nov 2015, 08:49 AM (-06:00) Creative Commons License

When it rains, grow rain lilies.

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Cheeseburgers in Pradise

Mon, 26 Oct 2015, 06:35 AM (-06:00) Creative Commons License

Ok. Enough of that. We’ve got a trip to finish.

If you’re still with me, it was morning in Florence. Early morning. It was time to catch the train.

Trudy and I got up well before the dawn, packed our bags and walked to the train station pulling them behind us, grateful for the sidewalks however narrow, because if we had been pulling those suitcases along the cobblestone streets, the whole city would have been up to see us off.

As it was, there were surprisingly many people arrayed around and in the station. Not surprising for a society that has an efficient train system, I suppose. Gotta be in Milan by morning? Catch the A train. (A good way to start the day, no matter how you look at it!)

And we had to be in Milan by morning. So there we were, outside the station in the dark.

Now, let me say a few words about McDonald’s.

Did you know that their colors in Europe are green and gold? Yes. It’s true. Their livery there reminds one of, say, Subway sandwiches. Secondly, did you know that you can’t get breakfast at the McDonald’s in Florence before 7:00am?

Like… what!? 

This had been our fallback plan. If it was too early to find something real for breakfast, we figured it’d be a sure thing to stop in at the 24hour McDonald’s that was just across the street from the station. Wrong. Hamburgers and fries for breakfast? In the dark? No. No. And no.

The fair and industrious Trudy found a bakery a couple doors down, and we were ready to head north.

More on that later.

If I Had A Pencil in My Hand

Sun, 25 Oct 2015, 09:14 PM (-06:00) Creative Commons License

1. If I Had a Pencil

If I had a pencil in my hand and a piece of paper in front of me, I might scribble something. A big soft-leaded pencil, maybe, that could make dark black lines across the page.

Except that isn’t true.

I wouldn’t make dark black marks. And if I had a brush, I wouldn’t paint dark strokes. I might do something with black paper, cutting out geometric shapes (little triangles and trapezoids). But even then, when I got done, I just don’t think the thing would be dark. Sure, there’d be black. But there’d be lots of colors. And lots of shapes. And there would be movement across the page like maybe a breeze blowing. Or someone walking across the lawn. Or a path thru the woods.

But not dark.

And anyway, I don’t have a pencil right now. No paper on the table. No brush. No scissors to cut with. And my digital tablet is sitting under a clutter of miscellany that really needs to be organized.

2. The Thing of It

So here’s the thing of it. There’s no easy way to say it. I have cancer. Again

A swollen lymph node on my neck that’s kind of hard to miss. I wonder if the forth graders noticed. Cancer growing at the base of my tongue. The doctors have seen it in scans. And biopsies.

There’s a treatment plan coming together. I’ll be spending some quality time in Houston. Taking some time off work.

So maybe I’ll get a chance to put that pencil in my hand after all.

 

 

The Day in Cartoons

Sun, 11 Oct 2015, 03:00 PM (-06:00) Creative Commons License

Our last day in Florence was full of art and architecture and of sculptures and gardens. We didn’t take in nearly enough — so much to see; so little time.

I don’t have anything particularly insightful to say about that day. Still, I’d like to share some of it. So I’ll walk you thru a set of cartoons of where we went — enough to let you walk along with us.

It began with Perseus with Medusa’s head under the open-air arches of the Loggia.

And as if to balance the grotesqueness, just inside the Palazzo Verrechio was Verrocchio’s Putto with Dolphin, which I photographed at the entreaties of Trudy.

Florence beckoned from outside.

Inside, there were angry lions

and men in sculpted agony.

From the windows of the Uffizi Gallery along the river, Florence and distant Tuscany continued to beckon.

as did too much stunning art.

Of course there was Botticelli’s Birth of Venus, where we were not alone.

Birth of Venus

At the end of the art extravaganza, the Ufizzi Tower looked down at us as we rested outside on a patio.

Uffizi Tower

From here, we crossed the Arno River along the Ponte Vecchio, where in old times the Medici made their way from Palazzo Vecchio to their summer palace. And we slowly made our own way to that very place, to Boboli Garden,

Boboli Garden

where we climbed the hill and rested our weary wheels and looked out on Tuscany as the sun set in the west.

Tuscany View at sunset

Tuscany View at sunset

When the announcement came that the garden was closing, we followed others who were gathered there and made our way back to the gates

Boboli Garden front gate

and retraced our steps 

Old Florence at night

back to our B&B where we packed our suitcases and collapsed into our beds in preparation for a dawn departure the next day.

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